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Networks & Resources

Listen to the stories of people in our dementia community.

Take a look at some fantastic resources to help you understand a little more about dementia.

See what is happening within our community, come and say hello.

You're not alone

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Deep

DEEP stands for the Dementia Engagement and Empowerment Project – it is the UK network of dementia voices. DEEP consists of around 100 groups of people with dementia – groups that want to change things.

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Howard Gordon

Global Advocate for Dementia and Rights. Co-Chair, 3 Nations Dementia Working Group. 

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January 2019 brought up 5 years since I think I started to notice changes that led to my diagnosis of Dementia.

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Audio Book

When Wendy Mitchell was diagnosed with dementia at the age of 58, she had to say good-bye to the woman she once was. Her career in the NHS, her ability to drive, cook and run - the various shades of her independence - were suddenly gone. Yet Wendy was determined not to give in. She was, and still is, propelled by a need to live in the moment, never knowing which version of herself might surface tomorrow.

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Peter Berry - Blog

Last year Peter Berry took on a cycling challenge of a lifetime, this year he is back, but has stepped his challenge up a notch by planning to cycle on his penny farthing. Suffork-born Peter Berry, 54 was diagnosed at the age of 50, with early onset Alzheimer's. Previously the owner of a thriving timber business, Peter was suddenly unable to run the business. 

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Book for children

A book, titles Mr Alzheimers, has been released into five schools in Salford, to teach children about alzheimer's and dementia. The idea for 'Mr Alzheimers' was created by Joy Watson, who had first created a teddy for her children to teach them about what is happening to their granny.

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Pedal People

Our volunteer cycle pilots ride out together with elder care homes residents – so they can feel the wind in their hair! 

Many elders rarely have the chance to enjoy an outdoor adventure otherwise. 

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Which Me am I today?

BLOG - 

Hello and welcome to my blog. On the 31st July 2014. 

 

I was diagnosed with Young onset dementia. I may not have much of a short-term memory anymore but that date is one I’ll never forget

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George Rook - Blog

Patient activist, Chair Shropshire Dementia Action Alliance, Influencer for change in healthcare, and I have dementia at 63!

I need to explore the ethics and morality of aspects of dementia in order to justify my views on some things. I have opposed the use of pretend bus stops in hospitals, or shops in care homes, that are installed to improve, in some way, the living experience. Read more my blog.

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Agnes & Nancy - Video

Agnes was diagnosed with dementia in her 50's. Five years have passed and she is still struggling with her new identity, and for the loss of who she once was. We follow Agnes in her quest for renewal and along the way our notions of what it means to have dementia are changed and given a new perspective. A film about friendship and living with dementia.

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Great Minds - Video

A film by Great Camden Minds and Lydia Shellien-Walker.

 

Great Camden Minds is an innovative peer support group for older people living with dementia, who challenge stigma and influence how we understand lived experiences.

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Hop 50+

The Hop 50+ is café and centre with over 1,000 regular customers.

 

People tell us it is their lifeline: that they feel they belong somewhere; it gives a focus to their week, and a reason to get up and go out.

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Hammond Care

A ground-breaking new book on sensory changes associated with dementia. "Talking Sense: Living with sensory changes and dementia", written by Agnes Houston MBE with Dr Julie Christie, and published by HammondCare.

CLICK HERE to download the book

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Step Change

We aim to help the care sector step across the threshold and fully involve their gardens and outdoor spaces in the care they provide their residents, so they can live the lives they choose.

 

We are garden designers with a background in creating gardens for therapeutic purposes.

 

Between Debbie and Mark, they have 30 years experience. 

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Keith's Story - Blog

Keith Oliver's new book. 'Dear Alzheimer's', is an intimate and empowering member of his experiences living with dementia.

 

The book contains a series of letters addressed to dementia, written as his condition progresses, each passing year. Read a few of the letters by visiting the 'visit website' button.

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A Good life - Video

A good life with dementia video.

 

Damien reports on a course to support people recently diagnosed with dementia.

 

Devised and delivered by people with dementia themselves.

1-2-1 peer support for anyone living with dementia

Community 1 day dementia learning & support for anyone wanting to find out more.

Bespoke organisational support for professionals wanting to be more dementia inclusive

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